AUTISM: THE MUSICAL
Marsha over at Sweatpantsmom asked me if Will and I would be interested in going down to Los Angeles to Paramount Studios to watch a screening of this:

AUTISM: THE MUSICAL
And then to write a review of it on my blog.
"In 1980, autism was a relatively rare disorder, diagnosed in one of every 10,000 U.S. children. Today, according to the Centers for Disease Control, one in 150 may be afflicted. AUTISM: THE MUSICAL counters this troubling statistic with the story of five autistic children, their families and the dynamic woman who leads them to defy expectations by writing, rehearsing and performing their own musical. An intimate portrait of these young people and their families as they struggle, and ultimately triumph, through the transformative power of theatre."
So, a week ago Sunday, Will and I were certainly happy to oblige. Although, I was slightly worried that I would be asked to leave the movie theater at some point during the showing. I've been known to laugh at the most inappropriate times. I've even guffawed in the receiving line at a funeral before. Make that plural; funeralS. I've burst out laughing at more than one.
I don't think it's because I'm being insensitive. At least, I sincerely hope not. But rather, it's more of the nervous-laugh thing. It's a defense. If I truly grasp the severity of the situation, I'd crumble. So, my sick-head chooses to laugh inappropriately and deal with the scowls and ridicule and taser guns.
Anyway, I was concerned that I'd laugh at the wrong times and be asked to leave. Or at the very least, be pepper-sprayed.
Well, I DID laugh. A LOT. We both did. In fact, we ALL DID.
And we smiled, proud smiles.
And grimaced and choked back tears, often unsuccessfully.
The film was raw and honest and beautiful.
And the people in it? Nothing short of astonishing.
After the movie, while driving back up north to Santa Barbara, the hills a brilliant green from the Winter rains, dotted with California Poppies and Lupine and some yellow-shit (not really shit, but yellow daisy-like flowers), the setting sun was casting its oranges and reds and pinks far up into the sky invoking the full splendor of a setting sun and I contemplated what seemed less like a documentary and more of an event.
I thought about what worried me; the ridicule that the autistic children face from the "normal" population. From bullies on the playground, or at the park, or at the store and how defenseless they are to them. I stewed about how easy it is for those spineless bullies to pick on someone not quite their size. And I thought about how the parents of these children are fearful of what might happen to them when the parents die.
And I found myself worried for the relationships of the people involved, for the extreme stress that is put on them.
And as worried as I was, I also found hope. Hope that these people, ALL OF THEM, were better off in someway and literally transformed from their experiences. And they found solace from their daily lives in putting on art, by basking in art, by breathing it, by living it. It united them, as it does us all.
And then I thought how we began watching a film about 5 autistic children and their families.
By the end, we had watched a very personal account of five vivacious people: Adam, Henry, Lexi, Neal and Wyatt.
By the end, we had watched a very personal account of their families and the trials and tribulations that they endured and continue to.
By the end, we couldn't stand tall enough in our ovation or clap loud enough in our admiration for all of their fierce spirits.
And by the end, the culmination of my emotions was deep gratitude.
It premieres on HBO, Tuesday, March 25th at 8pm. And if you don't have HBO, they'll be running a live stream for free from their website.





12 Comments:
I will be watching. And yes, watching your own child navigate all situations differently than the neurologically typical can be awkward and painful. Watching others watching your child is worse.
Wow, Kevin. I'll be sure to see it.
One of my nephews has three autistic children, all of whom are beautiful and other-directed. I don't know them well because of geography, but can certainly relate to your concerns and your admiration for these kids and their amazing parents.
I also love the new look of your blog.
Nice, I'm on it, definitely will watch, thanks for sharing.
You keep making me cry these days, kev
Of you have On-Demand, you might be able to see it before tonight. I got to see it this morning.
Very raw, and very inspiring.
Hey - did you see the article in Wired about the autistic woman... I'll dig around to see if I can find it. She's amazing - with the use of a computer? There's a lot going on there.
Hey, I tagged you for the Make a wish meme! :)
I MUST see that movie.
Thank you. I'm setting my DvR as soon as I publish this comment.
Kevin,
Thanks for bringing this to my attention, I will try to find someone who has HBO so I can watch this. If not then I will try to watch it on the live stream.
My nephew, Paul, is autistic. I have gone to every one of his school activities and now that he's older we spend a lot of time at Special Olympic events. I am so proud of him so all of these events are sob festivals for me and my sister.
I'm sure that watching this movie will elicit the same response.
Thanks for sharing this -- autism affects our family through my cousin and her son. We will have to find a way to view this... no HBO here. Maybe it will come out on DVD?
As a parent of an 11 year old autistic son, I was going to avoid this movie. I tend to avoid the "watch what your living then cry a lot" movies. But, thanks to your glowing review, I have tivo-ed the movie. I'll watch it when everyone is out of the house and I have a fresh box of tissues.
Thanks for letting us know about this!
A pretty honest review...
I went to the premiere here...
And I have found that my daughter has a few friends who are autistic....
These children, have the strongest parents alive, as they have fought to keep them in the school system, to keep them part of the mainstream...And not segregated..
And I for my part in the community support them...
And I as a parent, have ensured that my daughter is exposed...
And granted, it does take a different energy, as I have to help ensure the playdate, I have to have an organized activity, it enables my child to see these kids as part of the norm and fabric which make up her community.
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