It doesn't matter who they think you are. It matters who you think you are.

Wednesday, February 06, 2008

Kevin's Property, And A Second Birthday...

You poor things...I'm almost done. In fact, this should be it. Thanks for hanging in there! Unless you didn't. Then, THANKS FOR NOTHIN', MOM!! dang...

And for those of you who missed the first, second and third installments of this over-dramatic saga, well, there they are. I won't blame you if you choose to give the neighbor's cat a bath instead.

So, I went on a heavy chelator to rid my body of the excess copper that was literally destroying me. I was almost as frightened by the longterm side effects of the medication as I was of the condition.

Unfortunately, I was probably on the medication a year longer than I should've been. That was a lapse in judgment on the doctor's part. And when I questioned him about it, he was incredulous about my curiosity. Now, there's a surprise...

So, I found a new doctor. And he had his shizz together. And between the two of us, we sent those no-good-copper-chumps packing, without killing me in the process.

I have since managed the condition with zinc. I'm suppose to take 50mg of Zinc 30 minutes before every meal. And avoid foods that are high in copper. (Are you asleep yet?)

And I did that. For a looonnnngggg time. And then I got lazy.

I was still taking the zinc, but I was taking it WITH my meals. (You're sleeping, aren't you!!) And it didn't have enough time to absorb into my system to bind with the pending copper and flush it out my ass...or my peep...or in my boogers...or wherever the hell it goes flying out of.

And...living so close to wine country (look at me making excuses, like it's Santa Barbara's fault), a glass of wine here and there, turned into a glass of wine here and there and everywhere.

So, yeah. I got lazy and foolish and drunk.

A few days before Christmas, my doctor called...persistently. Which he never does, so I became concerned. I put down my drink and called him back. He said that my liver enzymes were 3 times the normal limits as were my copper levels. And he was concerned.

I snatched up my martini, swigged it down, bit the olive off the toothpick, threw the pathetic, vacant glass into the fireplace, and said, "Ohh, REEAALLLY!? Well, I'll be damned..."

It was humbling and a little depressing to hear right before the holidays. But, then again, it was a good thing to hear of it before I continued to do more damage...which was certainly the original plan.

WOOOOO--HOOOOOO!!! PARRRTAYYYY!! WOOOO!

Wasn't happening, damn it.

But, something else happened.

I was re-introduced to the pleasures of sniffing glue.

NOOOO!!! I'M JUST JOSHIN'!!

Okay, for real now. Something else happened...

I went back to dropping acid.

NNOOOOO!!! I'M KIDDING!!!

Okay, for real real...Something else happened...

I had tons and tons of anonymous sex and it was awesome. Will took pictures.

NNOOOOO!!! I'M JOSHIN' AGAIN!!! AAAHHHHH!!!!

Okay, okay, I MEAN it this time! I'M SERIOUS!! I quit, I promise.

Something else happened...

I was reminded of a few things. Over this past month of contemplation, I have gradually been taken back to a time 9 years ago, shortly after my diagnosis.

After I began to feel better from the chelation therapy all those years ago, I realized how truly terrible I had been feeling. It was as though I had forgotten how good it felt to not feel pain.

And when the dust started to settle and the smoke began to clear, I realized what a gift the Wilson's disease was to me.

It WAS a gift.

I was better because and in-spite of it. And I was extremely lucky that it hadn't been worse.

It slapped my mortal ass and even pulled my hair a little. But, it made it glaringly apparent just what was important. And more crucially, what wasn't. And when I contemplated what wasn't important...Well, that list was pretty long.

So, I've been reminded of those things.

And appropriately, I write of them today, on my 39th Birthday. I felt re-born in a way after recovering from the initial diagnosis of the Wilson's. And I feel that way now. A second Birthday on my 39th.

As messy as life is, far more so than I ever really knew, it's still beautiful.

I bought one of these the other day,


an exquisite violin.


Years ago, I played the violin, the cello and the piano.


And I have since let them all go. But, I'm going to remedy that.

I forget who said it, but art, whether it be music, literature or poetry, paintings, or sketches or sculptures or gardens, makes the unbearable, bearable.

And I cling to that.

There's also a quote from Sir Edward Burne-Jones that I love when he talked of art. He said, "I mean by a picture a beautiful romantic dream, of something that never was, never will be - in light better than any light that ever shone - in a land no one can define, or remember, only desire..."

I'd like to share with you some of my favorites that the brilliant artist William Bezek (my Bubba) has painted;


"Trio - Self Portrait" (Oil on canvas) He's the hottie on the far right.




"Dreaming of Venus" (Oil on canvas)




"Sugar Hiccup" (Oil on canvas, 66 x 44)


And correspondingly with how I feel today,


"Salvation" (Oil on canvas, 42 x 68)


And now, some art for your ears...



W.A. Mozart - Requiem




Maria Callas - "O Mio Babbino Caro"


So, besides celebrating my 39th Birthday today, I'm going to celebrate my 2nd as well. I want to remember how incredibly resplendent it all is. And to be grateful for it. And to inform the next 39 years, that I'm going to kick them square in their ass.

When I first began telling you about this whole thing, I titled it "The Wilson's Property" alluding to myself. But, now I believe that it's quite the contrary. It's the other way around. I don't belong to it...

It belongs to me.

StumbleUpon Toolbar Stumble It!

32 Comments:

Blogger Gretchen said...

Happy Birthday - both of them!

3:09 PM  
Blogger liv said...

I love this post---so full of verve. Happy, happy day!

3:13 PM  
Blogger artlung said...

Happy Birthday!

4:41 PM  
Blogger Nancy said...

Wonderful post Kevin.

Happy Birthday two ewe.

5:04 PM  
Blogger MamaLee said...

Happy Birthday, sweet boy. And yes, music is so powerful - and I'm glad you found the light of music that makes you shine from the inside out.

Keep it going...

And I raise my glass to you, dear, dear one. Take good care. xoxo

5:31 PM  
Blogger Marymurtz said...

I almost never comment, but I read your blog every day. I LOVED this post. Beautiful!

Happy 39th Birthday!

6:49 PM  
Blogger Suebob said...

1. Happy Birthday!

2. I stayed awake through the whole thing, I swear.

3. Will's paintings are just lovely.

8:26 PM  
Blogger carrie said...

Happy Birthday!

8:45 PM  
OpenID lizriz said...

Happy Birthday!!!

11:02 PM  
Blogger Nancy said...

A great post, Kevin! Happy Birthday!

12:00 AM  
Blogger Deb said...

I love the strength it took to post this. You taught me about something, I always like that!

Happy Birthday Kevin, I hope your 39th and 2nd are wonderful!!

6:00 AM  
Anonymous ~JJ! said...

Happy Birthday sweet stuff.

(By the way) I would NEVER fall asleep to one of your posts...You are so awesome.

I will be sending my Happy Birthday Vibes to you today...feel em?

No not that, that's me sending my happy hot birthday sex vibes...

That, there it is...Happy birthday friend.

6:35 AM  
Blogger Mrs. T said...

Happy Birthday! Beautiful paintings- absolutely beautiful.
I used to play the violin as well- it won't take much for you to pick it back up.
The "O Mio Bambino Caro" is one of my faves. It was sung at a friend's wedding- not a dry eye in the house.
I'm glad that the disease is your bitch. Keep it that way.
Enjoy your day!

6:48 AM  
Blogger furiousBall said...

Happy Birthday and good on you for that violin. Music is good for you.

6:59 AM  
Anonymous Corgimom said...

Happy Birthday!
Thanks for this final post. I stayed awake and my neighbor's don't have a cat, anyway.
Enjoy your new violin!

8:13 AM  
Anonymous canarygirl said...

Happy 39th and 2nd Birthdays, Kevin! I am so glad that you are in this world. (hug) And hell yes I've been awake through the whole story...are you kidding? If only I had 1/100th of your talent for telling a story.

8:22 AM  
Blogger Tami W. said...

Dear Sister in Arms,

"But, it made it glaringly apparent just what was important. And more crucially, what wasn't. And when I contemplated what wasn't important...Well, that list was pretty long"

When I was going through chemotherapy and the trauma of having my right breast removed from my body I had the same epiphany. It is so sad that it takes such a huge situation for us to learn such a simple lesson.

Music was/is my salvation, too. Jackson Browne was in my head during every one of my chemo and radiation appointments. His song, "I'm Alive" was my theme song.

The art my autistic nephew painted for me during those hard times may not be as spectacular as the beautiful art created by Will but it is every bit as precious.

Happy, happy birthday, dear Kevin, happy birthday to you.

(((((HUGS)))))

8:59 AM  
Blogger mamatulip said...

Awesome, Kevin.

Happy Birthday. I loved all the joshin' in this post.

10:20 AM  
Blogger kim said...

Ohhh Kevin *hugs you* I was just catching up with you after you abandoned me over the holidays :) ... you are truly a wonderful human being and I am glad you are paying attention to you and doing what makes you happy and sets your soul on fire!

A poem for you ...I wanted to share it with you because it brings me peace :)


When despair grows in me and I wake in the middle of the night at the least sound in fear of what my life and my children's lives may be, I go and lie down where the wood drake rests in his beauty on the water, and the great heron feeds.
I come into the peace of wild things who do not tax their lives with forethought of grief.
I come into the presence of still water.
And I feel above me the day-blind stars waiting for their light.
For a time I rest in the grace of the world, and am free.

~Wendell Berry~

10:41 AM  
Blogger Rattling The Kettle said...

Belated happy birthday!

Hey, if hearing the Wilson's story in person didn't put me to sleep, am I allowed to nap a little in the middle of the post? ;-)

1:14 PM  
Blogger Mel said...

Happy Birthday, love! I've said it before and I'll say it again - I'm glad you were born. I'm extra glad you're still around after hearing this story. Stupid Wilson, anyway.

And Will is incredibly talented.

2:31 PM  
Blogger Lisa Milton said...

Happy, happy birthday.

(And what an inspiring post.)

7:12 PM  
Anonymous Anonymous said...

Bravo! I love you and I love reading your blogs. Happy Birthday. BAK

10:49 PM  
Blogger dawn224 said...

Happy Birthday you wise, wise young thing you :)

6:17 AM  
Blogger Open Grove Claudia said...

Love you so very much - it brings tears to my eyes. I am deliciously delighted that you were born. I feel bless that we live at this place and time at the same time - a miracle.

Happy Birthday - love the paintings (fav is the last one - gosh that's delicious!)

Hey, if you get a chance - I'm asking people to give me a horoscope for this year as I didn't like the ones I got.... HELP! ;)

Happy Birthday - here we go around the sun again!

8:37 AM  
Anonymous Anonymous said...

My daughter plays cello and violin, her best friend is a gay male, and she is an artist. I think she may be the love child of Kevin and Will. There are some days I'd like to send her little teen-age butt back to them!

Happy Birthday Kevin. Aaaannnnn mmmmaaaannnnnyyyy mmmmoooorrreee!!!

9:29 AM  
Blogger Moobs said...

Happy Birthday Matey

First time I heard the aria (many years ago), I was stunned. I thought it was "O Mio Bambino Caro" and had a vision of a new mother singing to her child as it lay in her arms. I was transported.

Then I discovered it s some hysterical teen shouting at her dad and threatening suicide and it lost some of its charm

7:57 AM  
Blogger West Coast Grrlie Blather said...

Thanks for the best sleep in years! I even slept through the accusations that I may be sleeping.

"Heavy chelator" could be your rapper name...

More art, more music, more life...what a way to celebrate your health. Best wishes for a spectacular 40th year!

12:18 PM  
Blogger mommiebear2 said...

Happy Birthday!!

3:09 PM  
Blogger Stepping Over the Junk said...

Oh Happy Special Birthday day!! BTW, I LOOOOOOVE the trio self portrait Will did. LOVE LOVE LOVE. He is so talented. Hey, I'm coming to Cali on Thurs. Pray for good temps. It's 10 degrees here. Lots of love. M

7:49 PM  
Blogger Major Bedhead said...

Happy Birthday from the late Major Bedhead.


Wonderful series of posts, Kevin.

5:32 PM  
Blogger Mama Drama Jenny, the Bloggess said...

I'm so out of it. I missed your birthday and I didn't even know that Major Bedhead was dead.


Big hugs to you, my sweet.

9:34 AM  

Post a Comment

Links to this post:

Create a Link

<< Home

 

Kevin's Bio
Email Me




Add to Google
Subscribe in Bloglines

Get updates via email:

Delivered by FeedBurner

Featured in Alltop
www.flickr.com
kcharnas' photos More of kcharnas' photos

 

Copyright Kevin Charnas. 2004-2010. All rights reserved.